Our Five Ring Circus: Life with Down Syndrome
Showing posts with label Life with Down Syndrome. Show all posts
Showing posts with label Life with Down Syndrome. Show all posts

Monday, January 9, 2023

New Year’s Goals

Big family blog


New Year’s Resolutions. I just don’t make them anymore. Every year that I did, I felt like I was just setting myself up for failure. Instead, I choose goals. 

Goals are something to aim for. It’s okay if you mess up. It’s okay if you miss a day. It’s simply a learning process to reach those goals, and you can change or adapt as needed. 

Each New Year, I take a little bit of time to reevaluate my goals. I look back on the past year to see what worked, figure out what goals were reached, and decide which goals to keep, get rid of, or add. Because it’s the start of a new year, it’s a good time to make a new game plan for the year ahead! 

Monday, January 2, 2023

Ringing in 2023

Big family blogs

Once upon a time, New Year’s Eve was a big celebration for us. I have never been a fan of New Year’s Eve, and we aren’t drinkers, so we shifted our focus. New Year’s Eve became a party with my big family, until everyone started doing their own thing. 

Soon after, a big New Year’s Eve party with friends became our thing. Over time, our group whittled away, families moved, and kids grew up. Finally, instead of going to a party, we became the hosts. It has been that way for several years now. 

I miss how it used to be, but as long as I’m with my immediate family and closest friends, I’m happy. I realize that our traditions will adapt and change over the years, so maybe one day, it will become a big celebration again! Nothing is forever. Maybe I will even start to love the holiday!

Thursday, August 12, 2021

Myrtle Beach Pandemic Vacation - Day 4

Family Travel Blog


Day 4 of our September 2020 Myrtle Beach Vacation looked a lot like the previous days! Slow mornings, lots of relaxing, and spending the day swimming and sitting on the beach. We are beach people, so those long days on the oceanfront suit us perfectly!

We have always gone to Myrtle Beach in August, so we are used to the hot Summer days. This was a rapidly planned vacation during the off season. We couldn't pass up an end of September trip for the ridiculously cheap price of $1200 for the week!

While we were at the beach, we were able to celebrate the first day of Fall. It was different being there when the weather was cooler, but we still enjoyed ourselves. It was warm during the day, and cool at night, so there were lots of hoodies involved! We all thought it was cool that we experienced two seasons on our beach vacation!

Wednesday, August 11, 2021

Myrtle Beach Pandemic Vacation - Day 3

 

Travel with kids

Day 3 of our Myrtle Beach "Pandemic" Vacation was a relaxing one! Life is always GO GO GO for us at home, so we try to take it easy on vacation. In September, we took advantage of all the restrictions still in place, and just did our own thing at the beach. It ended up being one of our best beach vacations!

It was perfect, because we started each day slowly, spent our afternoons at the pool and the beach, ate dinner together as a family, took walks on the beach, and enjoyed late night swims. Although a few days were a bit more adventurous, day 3 was all about relaxing and just enjoying being at the beach. It truly is our happy place! 

I'm not quite sure what this month's vacation to the beach is going to be like, but we will definitely be adopting a few of those lazy days strategies. Slow mornings were new to us on this vacation, and we all agreed that it was exactly what we needed. Recapping this last trip from September is making us feel so excited for our upcoming family vacation!

Tuesday, August 10, 2021

Life with Down syndrome: Dream Night At The Zoo Drive Thru

 

Down syndrome blog

On May 2nd, our entire family headed to the Pittsburgh Zoo & PPG Aquarium for Dream Night at the Zoo. We have been attending this awesome event for years with our sweet Liam, and it's one of our favorite ways to meet up with our Down syndrome community! They didn't have it last year due to the shutdown, but this year, they had a drive thru.

Although we definitely prefer the in-person event, we still had a great time! They made it so special for all of the amazing kids, and there were so many animals to see. Our kids had so much fun, and their only complaint was that it didn't last longer!

Coen had only been to the zoo once before he turned a year old, and he slept through it, and then the world shut down. We went to the Christmas Lights Drive Thru at the zoo, but he didn't really see any animals. This time he was mesmerized by all of the animals! It was his first real zoo experience that he was awake for, and we can't wait to take him back to see everything. As for Liam? He was grinning the ENTIRE time!

Wednesday, July 28, 2021

Big Family Life - What It's REALLY Like

 

Down syndrome blogs

I grew up in a big family. It wasn't a traditional big family - my mom had 4 kids, my dad had 3 kids, then they got married and had me. Technically, I have half siblings, but I prefer to drop the half, and just call them my siblings. I grew up in a family with 8 children, but because I was so much younger, I also got to experience life as an "only" child when I was a teenager. It definitely gave me a unique perspective!

I always wanted to have 4 kids, but didn't expect that to happen, so I am definitely surprised that we have more. I know we are considered a big family, but truthfully, it doesn't feel that way. When you grow up with 7 older siblings, a family with 5 kids doesn't seem THAT big. Where we live, however, our family is unusual. 2 or 3 kids is the norm here, and it's hard to find young families nearby with more than 3 children.

We get a lot of questions and comments about our family, in real life and online, so I figured I would give the inside scoop! If you are a long time reader, you were able to watch us go from a family with just two kids and no plans to have anymore to a family with five kids, including one who has Down syndrome. Yes, they are all ours, yes, they are spaced out in age, yes, we know how it happens, and yes, we LOVE our big family. So if you're wondering what big family life is really like, here goes...

Tuesday, July 27, 2021

Traveling During a Pandemic: Our Family Road Trip to Myrtle Beach

New River Gorge


2020 was a year unlike any other. There was so much we couldn't do during the pandemic, including going on our usual Summer vacation to the beach. It turned out that we just needed to rethink our travel plans!

Like so many other families, we were being careful, and avoiding travel, especially to hotspots. As Summer neared an end, we decided we would look for a condo at a beach, since Fall isn't a peak time for beach travel. We knew we were going to have to wear masks, and we knew the weather was going to be cooler, but we just wanted to get away after the craziness of the year. 

We ended up finding a big condo in Myrtle Beach, for an INCREDIBLE deal, at the end of September. We immediately booked it, then invited my dad to join us. We had never taken anyone on our family vacation, and we had never gone during the school year, so we were excited to try something different! It ended up being a great vacation full of fun memories. We are officially less than a month away from our 2021 beach vacation, so I figured I would do a quick recap of our pandemic vacation before I start packing for our next trip!

Sunday, March 7, 2021

Making Life Easier One Shoe at a Time with Xpand

Down syndrome

*We received the following product free in exchange of our honest review.

When you have a big family, there is a LOT to juggle! There is no extra time, so any second saved is precious. I'm always looking for ways to save time (and energy), so I was thrilled to discover a time-saving product - Xpand!  

With Xpand, you never have to tie your shoes again! I love the concept behind this product, especially for Liam. We love them so much that we're replacing ALL of our laces with Xpand laces!

Putting on shoes is so much easier these days. It truly does save me time, and is much less stressful! And if you have little kids or a child who has extra needs, Xpand is a must have!

Tuesday, November 3, 2020

What We REALLY Want You To Know About Down Syndrome

Down syndrome

Down Syndrome Awareness Month has come to an end. Most people are aware of Down syndrome, but the majority of people don't understand exactly what it is. So many people still view it as a tragedy or something to fear. What they can't allow themselves to see is that a person with Down syndrome does have differences - just like any other person - but they truly are like every other person on this planet...just with an extra chromosome!

I advocate for Liam and his peers through inclusion. I share about life with Down syndrome by simply sharing our family. Liam does what we do, goes where we go, and is very much an intricate part of our family unit and our community. Down syndrome is a part of him, just like his big blue eyes that are flecked with Brushfield spots or his joyful smile, but we refuse to let it define him.  

I spent the month of October advocating for Liam by sharing how he has impacted the lives of those around him. I have been advocating for over 7 years, but my ways have definitely changed. I used to share facts, but now I just let Liam and our experiences lead the way. I always share from my heart, so I will let Liam's siblings and grandparents tell you all about life with Down syndrome, before wrapping it up with a few things I really want you to know about Down syndrome.

Friday, September 20, 2019

Family Fun & STEAM in Pittsburgh at MuseumLab

MuseumLab


This post is brought to you by The Children’s Museum of Pittsburgh and The Motherhood. All opinions are my own.


When I was a child, my dad used to take me to The Children's Museum of Pittsburgh. I LOVED visiting a museum that felt like it was built just for me! Years after I grew up, I visited my favorite museum with my first baby. I vividly remember the excitement I felt when I took him there for the first time. It was as if I was sharing a piece of my history with him. There have been four more first visits since then, but it never gets old!


My first baby is nearly 15 years old, my last baby is 6 months old, and we have a tween, an 8 year old, and a 6 year old, who has a developmental delay, in between. We have kids in every stage of development, and it's difficult to find a place to visit that they all enjoy. Thanks to a great new addition to The Children's Museum, it's now a perfect spot for my entire family!

In April of this year, The Children's Museum added MuseumLab, which is located next door. It was created to grow along with families, and is specifically geared toward kids over the age of 10 and adults, but is great for multi-age families like mine. It is a STEAM-lover's dream spot, and inspires kids to use their minds and be creative while having a LOT of fun! 

Sunday, May 5, 2019

I'm BACK!!! / Easter 2019 / Baby's First Easter

Easter Photography


Hello, friends! I'm (hopefully) back for good! I had no idea adjusting to life with five kids was going to be so difficult and time-consuming. Adjusting to life with 1, 2, 3, and 4 kids (even with a surprise Down syndrome diagnosis) was a breeze, but 5 is the number that did us in! Liam is approximately 10 kids in 1, and Coen has acid reflux and is such a mama's boy that my husband lovingly refers to him as my little parasite. My hands are never free, but I think I'm getting the hang of things, and I'm kicking off my return to blogging with a quick recap of Easter 2019!


This year, we kept Easter simple. We had no idea that Coen had acid reflux yet, so he was really fussy. We decided to spend most of Easter at home, focusing on family activities. Although it didn't feel quite the same, we had a nice holiday!

This year, we took the focus off of the Easter Bunny. We haven't visited the Easter Bunny in years, and this year we didn't do any egg hunts, either. We briefly mentioned the Easter Bunny bringing baskets, but that was it. Instead, we dyed Easter Eggs together. We had a small family dinner. We talked about the reason we were celebrating. We baked and decorated cookies. We sat down to watch The Ten Commandments together. Perhaps next year we'll actually make it to church, but this year, I decided to let go of the guilt, realize that we can't possibly do it all, and focus on WHY we were celebrating in the first place! And you know what? Once the pressure was off, it was GOOD!

Sunday, April 14, 2019

Our Five Ring Circus

Our Five Ring Circus

Welcome to Our Five Ring Circus! After 10+ years of some form of Lexie Loo & Dylan Too, it was time to bring some changes to my blog. It took a lot of thought (literally months), and it's a work in progress, but I feel like this new name fits this season of our lives so perfectly!


Back in 2008, I started this blog simply because I wanted to keep family members and friends updated on what we were up to, and to journal life with our two kids, Dylan and Lexie. Lexie Loo & Dylan Too was the perfect name at the time. When Lily was born, I changed the name to Lexie Loo, Lily Boo & Dylan Too. By the time Liam came around, my blog was already well established, and I didn't want to "re-brand" so it became Lexie Loo, Lily, Liam & Dylan Too.

When we found out that baby #5 was on the way, I did start to contemplate what I was going to do with my blog. Pregnancy is very tough on me, and I knew my time was going to be limited with a newborn and juggling five kids, but I didn't want to give up blogging completely. It was tough to realize that I was only able to post a few times a month, but I decided to give myself grace, and do what I could, when I could.

During the time that I wasn't able to blog, I started thinking about how I needed to re-brand, and began to brainstorm ideas for a new blog name...

Monday, April 8, 2019

Liam and the Very Special Arts Exhibit

Liam and The Very Special Arts Exhibit

Liam is 4th in the lineup of five kids. With three older siblings, he is always coming along to support them during their many activities, sports, and school events. Now that Liam is in Kindergarten, he has his OWN activities and school events, and it's our turn to support him!

This year, Liam's art teacher submitted his Kindergarten artwork to the Very Special Arts Exhibit. It  is currently on exhibit at Grove City College's Pew Fine Arts Center until April 17th, with artwork from other K-12 students in three counties. Very Special Arts is an international organization on arts and disability, and provides arts and educational opportunities for people with disabilities, while helping increase the access to art for everyone.

On Saturday, they hosted a reception for all the young artists who had artwork on display. It was a fun event, and such a special day for our sweet Liam!

Wednesday, February 20, 2019

Life Lately - Countdown to Baby!

Life Lately - Countdown to Baby!

Hello, my friends! This space has been very neglected over the past two and a half weeks. I'm currently almost 37 weeks pregnant, and we have been in full Prepare For Baby mode lately! My focus is on organizing all the things, getting the house ready for a newborn, and dealing with the usual busyness of life right now!


I feel so much guilt over neglecting all the posts I had planned, but I'm working hard on giving myself grace. This pregnancy was a big surprise, and it has been very difficult for me. I am so ready for it to be over, and for this baby boy to finally be in our arms! I'm ready for my body AND my life to get back to normal, even if that new normal is going to be even busier!

Here's what we have been up to over the past few weeks while counting down to our baby's arrival...

Sunday, December 16, 2018

Sweet November - A Photo Recap

Sweet November - A Photo Recap


I said it before, but November went by ridiculously fast! Then again, that's every month these days. The truth is, the more kids you have, the busier life is, and the faster the months (and years) go by!


November was filled with so many sweet everyday moments, but we also celebrated Dylan's birthday and Thanksgiving, had many school events (which ended up on my smartphone's camera roll), Dylan started basketball, and we kicked off the holiday season! Because our December has been so busy, I've only been able to blog once a week, so I figured a short and sweet life lately post was the way to go!

Here's a glimpse at life in November...

Wednesday, September 19, 2018

How To Build Fine Motor, Gross Motor, Language, and Cognitive Skills Through Play (Featuring Cubbie Lee Toys)

How To Build Fine Motor, Gross Motor, Language, and Cognitive Skills Through Play (Featuring Cubbie Lee Toys)

This post contains gifted products from Cubbie Lee Toy Company.

Up until Liam was born, I didn't think much about the quality of play. Play was just something that all kids did. I certainly didn't think in terms of gross motor skills, fine motor skills, language skills, and cognitive skills. Learning those valuable skills was just something I took for granted until my fourth child was diagnosed with Down syndrome. That diagnosis introduced us to a whole new world, including actually thinking about and researching how much play matters.


See, playing is more than just something kids do. Play not only inspires creativity and imagination, but it also leads to healthy brain development, and it builds fine motor, gross motor, language, cognitive and social skills. Kids can actually learn more through play at an early age, than by sitting down with learning materials, so it's important to fill your home with quality toys and encourage kids to play as often as possible!

We were introduced to the concept of quality play when Liam was 2 months old. At that point, home-based early intervention therapy services began. A speech therapist, an occupational therapist, and a physical therapist began to visit our home each week. I closely observed what the therapists were working on, asked lots of questions, began to research toys and activities that helped build important skills, and asked for toy recommendations.

It turns out that we already had a lot of quality toys, but from then on, I became very selective about the toys that we purchased. I also encouraged Liam to play with a wide variety of toys that would help him develop and grow! Using play to help build fine motor, gross motor, language, cognitive and social skills isn't just for kids with special needs. It's important for kids of ALL abilities!

Tuesday, September 18, 2018

Liam Lights Up Times Square

Liam Lights Up Times Square!

On Saturday, Liam's picture appeared in Times Square, as part of the NDSS Times Square Video Presentation, which highlights the lives of people who have Down syndrome. This was the second time Liam was featured, but yet again, we were unable to see it in person. Thankfully, we watched live (and cried)! Thanks to some amazing friends whom we have never even met, pictures of Liam from every angle in Times Square, came flooding in shortly after the presentation!


If you've been reading my blog for any amount of time, you probably already know that we had a surprise diagnosis of Down syndrome with Liam after he was born, and it wasn't even confirmed until he was a few weeks old. Initially, it was a huge shock, but life didn't change in the ways we expected. Instead, we decided that we were going to raise our son exactly like we were raising his older siblings, and life with Ds actually became quite normal.

Life with Down syndrome isn't always easy, but again, life with ANY child isn't always easy. The truth is, life with Down syndrome is actually "typical" the majority of the time, and we're devoted to bringing awareness to the fact that Down syndrome is nothing to fear! The NDSS Times Square Video is a powerful way to bring awareness to an often very much misunderstood genetic condition!

Tuesday, August 14, 2018

Life Lately

Life Lately...Mom Life with four kids and Down syndrome

I'm back! The past three weeks have been rough. Liam got sick on July 24th, and it took him over a week to bounce back, then I caught his germs. I haven't been that sick in many years. I literally stayed home for almost an entire week, and couldn't leave my bed or the couch. I'm still not 100%, but it's a huge improvement from last week!


Needless to say, I won't be posting a weekly recap this week. If I did, it would look something like this: Monday sick, Tuesday sick but had to run a few errands, Wednesday sick, Thursday sick, Friday sick but starting to feel better, Saturday and Sunday weak and exhausted. I only pulled out my camera once the entire week, and I didn't get anything done! Lily spent this past weekend at my parent's house, Dylan had a friend sleep over on Saturday night and he spent all day Sunday with us, and Lexie went to her friend's house on Sunday. I feel like the past three weeks of Summer passed by in a blur while Liam and I were sick!

We hit the ground running today (Monday)! Liam has his last three days of preschool this week, and we have so much to do to prepare for our upcoming beach vacation. I also have to get back to work, and catch up on some sponsored posts that had to be pushed aside while I was so sick. I have so much unfinished content in my drafts folder, but right now I only have the brainpower to focus on real life posts! I'll get back to focusing on content after I get back from vacation and the kids go back to school. So for now, let's chat...

Wednesday, August 8, 2018

Family Fun at Virginia Beach {Day Six}

Family Fun at Virginia Beach

We are less than two weeks away from our next family vacation, and I have yet to finish recapping our last trip. I took so many pictures during the last three days in Virginia Beach that I have to break it into two posts, but I'm determined to finish the recap over the next week! Although I do want to share our family trip, it was honestly very low on my list of priorities over the past year!


We absolutely love Virginia Beach, and have gone there the past few years, but we opted for a different beach this year. We're excited, but looking back at all the fun pictures makes me regret that just a bit! If only we could plan TWO beach vacations each Summer...or just move to the beach!

Tuesday, August 7, 2018

The Mom Life Chronicles

The Mom Life Chronicles

The past few weeks of Summer have been a blur. After taking care of a sick Liam for two weeks, I ended up catching his germs. Although I didn't get nearly as sick as he did, the sore throat is brutal, and I'm now on day four of feeling miserable. That makes mom life a bit tough! Here's hoping the germs leave our house soon, and nobody else gets sick!!!


Here's a glimpse at mom life over the past week...