I haven't had the urge to write about what has been going on with Lexie, after an awful appointment last Monday, with her Gastroenterologist. I left the appointment, feeling as if we had wasted 5 long months with a doctor who has made no progress whatsoever, and had no clue what was going on.
I know a lot of you have already heard what's going on, but here's and update for those who don't:
Lexie did end up having more blood work done on Monday. Her Gastroenterologist called with a very vague message about how she needed to speak with us regarding something that popped up in Lexie's blood work. After hours. On Friday night. And I missed the call, and ended up waiting all weekend, and all day today, only hearing from her at 6:30 this evening.
Lexie's blood work in February showed that she was anemic. This round of bloodwork showed that her levels had dropped, so she needs to go on a stronger perscription iron supplement. On top of that, her Neutrophils were several hundred points lower than what is considered normal. The Gastroenterologist said that her levels fell into the range of Neutropenia. Although her numbers were low, she is not considered to be severe, but we do have to go to Hematology now. They will confirm if she really does have Neutropenia, do in depth blood work, and try to find the cause of it.
In the meantime, we have to do yet another stool sample. If the results are positive, they are going to do an endoscopy. I am keeping my fingers crossed that it won't come to that!
Lexie is doing well. You would never know that she was having problems just by looking at her. She has never been categorized as failing to thrive, but obviously the chronic diarrhea is starting to affect her, with all these deficiencies showing up. Her eating habits (although they seem to be improving this week) and chronic diarrhea tell a different story, though.
I am hoping we are able to get an appointment with Hematology within the week, and get this thing figured out. And hopefully Lexie will be diarrhea free in the near future!
I will keep everybody updated as we get the tests done, and receive more information. Thank you for the kind words, thoughts, and prayers that you've given us over the past few months, as we've dealt with this. It's been an emotional, frustrating, sometimes scary roller coaster ride, but hopefully the end is in sight, and Lexie can get the help she needs so she can get back to normal!



















