Our Five Ring Circus

Monday, October 14, 2013

Pumpkins Galore!

October is a fun-filled month for our family.  One of our favorite things to do is visit a pumpkin patch!

Last year we didn't get a chance to go to the pumpkin patch or celebrate Halloween.  Grant's dad was very sick and passed away in the middle of October, so it put a damper on things. 

We made visiting the pumpkin patch a priority this year.  Dylan and Lexie were so excited to go, and I was excited for Lily to experience it this time.  The last time we went, she was only 2 months old! This Saturday, we decided to defy tradition, and visit a different one!  It was a perfect, unseasonably warm October day!

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As soon as we got to the farm, we got in line for the hayride.  I had to run back to the car, and when I returned, our good friends, Gary and Tracy, had arrived with their family!  Grant decided to move to the back of the line so we could go on the hayride with them.

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As we climbed onto the hayride, we were each given an apple from their orchard.  My apple lovers were thrilled!

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The hayride was very bouncy, but the kids loved it!  Once we reached the pumpkin patch, the kids ran straight to the corn maze!  Dylan ran ahead with Dom, but the girls stayed with us.

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When we came out of the maze, the view of the farm below was breathtaking!

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The kids had already run over to the wooden cutouts, so I quickly snapped a few pictures.

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Finally...the search for the perfect pumpkins began!

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Lily was so adorable!  She ran from pumpkin to pumpkin, shouting out "pumpkin!" and bent over to inspect each one.

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Just when we had the perfect pumpkin, another was found!  Then Grant and the girls went in search of a "ghost" pumpkin.

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We managed to find four of the cutest pumpkins in the patch!

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Once the pumpkins had been found, we got in line to take a hayride back.  My kids thought our trip was more fun with their friends!

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(Picture below borrowed from Tracy)
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We enjoyed the bumpy hayride back down.

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Liam slept the entire time, but I had to get some pictures of the littlest pumpkin in the patch!

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The kids ran off to the straw barn to play and slide.

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We finished by documenting just how tall everyone was this year.

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I can't wait to watch them grow!

We had so much fun!  We loaded up our car with pumpkins and tired kids.  Our trip to the pumpkin patch was a huge success!

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We can't wait to go back!

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Wednesday, October 9, 2013

Just Lily

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Each of my children have a special gift.  Lily's gift is that she can bring a smile to the face of anyone she meets!

Lily is full of life! She is happy, bubbly, sweet, affectionate, sassy, and funny!

*When we get her out of the crib in the morning, she greets us in the most excited voice, "E-You, Daddy!" or "E-You, Mommy!"   That would be thank you in Lily speak.

*Every morning, I ask her what she wants for breakfast.  She sucks her thumb, while thinking it over, then responds, "Uh...Buh Bread."  (Butter Bread) or "Waf-foo."  (Waffle)

*She loves to dance.  We joke that she can't control the wiggle, because she can often be found dancing in her car seat or chair at the table, without any music playing.

*She will sing along to any song on the radio.

*When the kids play Just Dance, Lily joins in.  If she hears the song on the radio or iPod, she will perform some of the dance moves from the game!

*She wears a tutu almost every day.  Over her pants, with pajamas, under a dress... She calls it her "skut."  (Skirt)

*She calls her bum her boo-ty.  If she falls down, she will hold her bum and say, "My boo-ty!  Owie, my boo-ty!"

*She loves Mee-Mouse (Minnie Mouse) and Do-Wa (Dora).

*Her favorite lunch is Ah-Cheese.  (Mac 'n Cheese)

*Soup is Poop and Book is Boop.

*Water is La-Loo and Lollipop is Bee-Ba.  No matter how many times we correct her, she still uses her words!

*She mispronounces many words, but can say long or difficult words perfectly!

*Before naptime and bedtime, we have to say a prayer and sing Teetle.  (Twinkle Twinkle Little Star)

*She calls people by the funniest names.  Dylan is Dih-Din.  Lexie is Yes-She.  Liam is Miam.  Amber is Am-BRRRRR or Ambo or Amboo.  Aunt Annie is Aunt Ninnie.  Uncle Eric is Unc-ew Oshosh.  Uncle Mack is Uncle Butt.  (The best.  Obviously!)

*She loves bee-bees.  (Babies)

*Her favorite show is Boohbahs.

*She loves to play with her baby dolls and the doll house.

*Her favorite shoes are flip-flops.

*She has to drink "Fof-fee" with mommy every morning.  Coffee is 1 teaspoon of coffee mixed with milk and a bit of creamer.

*She potty trained very quickly.  Completely pee-trained before she turned 2, and completely day trained 1 week later.  She still wears an "Up-Up" (pull up) at nighttime.

*She claps her hands and says "YAY!"  for everybody that uses the potty.  She cheered for our friend as she walked out of a port-a-potty yesterday!

*She calls herself Lee-Lee.

*She loves to do EVERYTHING herself.  She says, "NO!  LeeLee do it!"

*When she poops on the potty, she mutters over and over again, "Ah Poopin.  Ah Poopin.  Poopin.  Ah Poopin."

*When she gets hurt, she says, "Owie.  Owie owie owie!"

*She still falls asleep at least once a week on our Great Dane.  

*She doesn't have a lovey, but still sucks her thumb.  When she's tired, she sucks her thumb will twisting her earring with her other hand.

*She loves her bank-it.  (Blanket)  She has to bring it with her when she wakes up in the morning, take it to the bus stop, take it in the car, and take it back to bed with her.  Any blanket will do.

*She often insists on sleeping in shoes at night.

*She loves to read.  Her favorite books are Ah-Moon (Goodnight Moon), Miss Spider's ABC's, and Sesame Street Pumpkin Patch Party.

*When she sees Liam's poopy diaper, she says, "Ewww, Scusting.  Scusting!!!"  (Disgusting)

 *If we have to leave her, when we return, she greets us so happily, "HI, Mommy!!!"  "Hi, Daddy!!!"

*She puckers up her lips and leans in for a smooch when someone leaves, then insists on a "ha."  (Hug)

*Recently, we stopped to visit Grant's dad's grave.  I parked in front of the stone, got Lily out of the car, then went around to get Liam out.  When I checked on her, I found her kneeling in front of her Pap Pap's stone, sucking her thumb.  She had found it on her own.

Photo: We stopped by the cemetery yesterday to visit Grant's Dad's grave. I got Lily out of the car, then went to the other side to get Liam. When I checked to see where she was, I saw this...

*A few weeks ago, Grant was putting hot sauce on something.  Lily wanted to try it, so Grant dipped a fish stick in it and handed it to her.  She took a bit, smiled, and said, "Dood!"  (Good)  Slowly, her smile faded and a disgusted look took over.  She literally growled at Grant, "HOT SAUCE!"

*Finally, the other day we were walking with a friend.  Lily loves bugs, so I handed her a caterpillar, just as I have done many times before. She loves when they crawl on her hand. (We call them Wooly Bears here in PA!)  She picked it up, and held it to her cheek, but something went wrong.  I'm not sure if it scratched her or bit her (do they even bite?!?), but she squeezed it and caterpillar guts shot into her eye.   It was completely repulsive, but then she started crying as she sat the warm on her stroller tray.  "Saw-wy, wom, Saw-wy.  I saw-wy."  I felt so bad for her because she didn't mean to hurt it.  Later that day, her eye ended up infected.  Luckily, it cleared up by morning!



Lily is quite a character!  She makes us laugh and smile every single day.  She brings so much joy to our lives! 

Sunday, October 6, 2013

Dashing

Hello!  I hope everybody had a wonderful weekend! Right after Liam was born, I was asked to contribute a post to the What To Expect website.  I immediately chose a topic, and began writing while the memories were still fresh. You can read it here!  

On Saturday we participated in our very first Dash for Down Syndrome, held at nearby Hartwood Acres. 

We were told about it after I announced the news about Liam.  We were not going to attend this year, but at the last minute, I felt the overwhelming need to go.  We rearranged plans so we could make it.

It ended up being a perfect day!  The weather was perfect, the trees were beautiful, and it was a wonderful experience!

I can not say enough great things about this event! As soon as we arrived, I was overcome with emotion.  Everything was perfectly coordinated and we were overwhelmed by the amount of people that were there and the sense of community that surrounded us.

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As soon as we registered and met a few new people, we headed over to the petting zoo.  It was Dylan, Lexie, and Lily's favorite part of the day!  They were so excited to feed all the baby animals with bottles!

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The kids reluctantly agreed to leave the petting zoo, but some of my extended family had arrived, and we had planned to meet up with them.

Two of my dad's cousins, Rita and Ruth Ann, came to the Dash. Rita's daughter, Alex, and her boyfriend, Zack, came along, too. They are a wonderful family! Rita has done an amazing job raising her 4 kids.  They are the sweetest, most polite teenagers/young adults that I've ever met. My dad's cousin, Ruth Ann, lost her son, Joey, when he was 11 years old. I was really young when he passed away, and now that I understand what she went through, I have so much respect for her. He had Down Syndrome, so they were walking in honor of him.

It was their first time meeting Liam!

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My kids adore Alex, and she had the same effect on Liam!

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We had some time before the dash began, so the kids had cookies, got balloons, got tattoos, got their faces painted, met the mounted police and their horses, and played a game.  Liam was obviously too young to enjoy any of it, but he was perfectly content in the carrier.

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Finally it was time for the Dash to begin! We were in the middle of the pack, and the line of supporters stretched as far as the eye could see.  Our family walked for Liam and in remembrance of Joey. 

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It was an amazing experience walking with people who all had the same goal.  It was so wonderful that we could walk with family members we only see a few times a year.  I was so proud to walk for our sweet Liam.

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I am so thankful we attended the Dash.  I know Grant feels the same way.  Our family had a great time, and it was an incredible experience for the kids!  We left the event feeling hopeful about Liam's future and inspired to rally our family and friends to join us next year!

Liam slept through the entire event, but I know he's going to enjoy it for years to come!

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Team Liam!!!

Wednesday, October 2, 2013

Liam's Birth Story: The Beginning

Liam's birth story is nothing like I imagined it would be.  It was the day that changed our lives forever.

Although very much unexpected, it is HIS story, and it's every bit as special as Dylan, Lexie, and Lily's births.  I am proud to be able to share it!  I experience so many emotions when I think about the day we met Liam.   The hours after his birth are a blur, and there are so many things I wish we could go back and relive.

When I think about Liam, only one word comes to mind now: Blessed. 

It all began on the day I reached 37 weeks. 

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I was thrilled to be full term, and so excited to meet our baby!  Although I didn't know it at the time, it would be my last weekly pregnancy update.

That afternoon, my mom and I had plans to go to Costco and WalMart to stock up on food and supplies before the baby arrived.  When I picked her up from work, I joked about our shopping trip putting me into labor.  Little did I know that would be true!

While we were out, I was having very strong Braxton Hick's contractions.  By the time we finished shopping, there were slightly painful ones mixed in.  That evening, I told Grant that I was pretty sure that I was in the early stage of labor. 

The next day was Saturday, so we all slept in.  Sure enough, when I woke up, the contractions started again.  I called my parents around noon to give them the warning that I would probably be going to the hospital within the next 24 hours.

That evening, we had plans to go to our friend's house for dinner.  Grant thought I was completely crazy for still wanting to go, considering the fact that I had been having regular contractions for almost 24 hours.

We went, and during an absolutely delicious dinner, the need to actually time the contractions hit me.  I downloaded the app while we were eating, and I began timing the contractions.

After dinner, we all sat down and just spent the evening talking.  My contractions were coming every 5-10 minutes.  Every time I had one, everybody stared at me in silence until it passed.  I finally looked at Grant and told him that we should probably go home, put the kids to bed, and get things ready to go to the hospital.

Once the kids were in bed, we sat down on the couch and watched an episode of "Cheers."  I was still having contractions, but they had slowed down a bit.  We headed to bed, confused and frustrated.  I only slept about 2 hours, then got out of bed, in the middle of the night.

I was feeling very restless and the contractions were coming every 5-10 minutes again.  I had coffee, cleaned the house, talked to a few friends an family members, fixed my hair and put on makeup, and paced the house. During all that, I had several signs that the baby would be born soon.

 Around 6 AM, Grant noticed the bed was empty and ran to check on me.  I told him that I thought we would be heading to the hospital soon.  He suggested that we left then, but I was still in denial and thought they would send me home if I went to the hospital.

Sometime between 7-8, I realized that this was it. I called my parents to tell them that they should come over soon, then I called my OB office, and waited for a call back from the on-call doctor.  When the doctor called back and told me to come in, I was so relieved.  I was also thrilled that my favorite doctor was going to be the one to deliver my baby!

My parents arrived, we kissed the kids goodbye, and headed to the hospital.  

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Let it be known that GRANT WAS RIGHT...AGAIN!  We should have left at 6 AM.

By the time we got in the car, I was in full-blown, active, PAINFUL labor. The contractions were coming at lightning speed, and once again, I felt like I was going to deliver in the car.  It was exactly like our experience driving to the hospital when I was in labor with Lily. I was gripping my seat the entire time. 

We reached the hospital just before 9 AM, and we slowly made our way to labor and delivery.  Our nurse, Crissy, met us in the hallway, and Dr. Kapnadak waved to us from the desk. Crissy took us to triage, because I was only 37 weeks, and they wanted to make sure it was actual labor.   Oh, I knew it was!

The only other time I had to go to triage first was with Dylan, who was born preterm.  I gave a urine sample, got changed into the hospital gown, answered all the questions, got hooked up to the monitor, and waited for my doctor. Meanwhile, Grant got to hear our baby's heartbeat for the very first time!  My doctor came in, checked me, and announced that I was over 5 cm and completely effaced!  This was it!

Everything happened really fast after that.  We walked to the delivery room, and the nurse hooked me up to the monitors.  My IV was put in, and soon after, I got the epidural.  Grant got our bags from the car while I was having it put in.  This was a much more pleasant experience than my previous experiences with the epidural!

Once the pain medication kicked in, Grant and I were able to relax, and tell everybody that it would be our baby's birthday!  He/She would be sharing a birthday with my sister, Pam!  I was still in disbelief, but so excited to meet our baby!

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I spent the next two hours quietly progressing.  Whenever I had to lay on my back to get checked, my blood pressure would plummet, causing me to nearly pass out and feel really nauseous.  Medication helped somewhat, but I just avoided my back!

Grant and I kept checking the heart rate and putting in our guesses for the gender, attempted to choose a boy name, and visited with my sister, Kelly, who showed up near the end of my labor.

Finally the doctor came in for another check, and said that I was fully dilated and ready to go! I can't remember the exact time, but I think it was sometime after 1:00.   My sister went to the waiting room, and they quickly got the bed ready for delivery. Surprisingly, my water never broke!

I remember thinking how surreal it felt and feeling like it was all going by too quickly.

Everything that happened from that point on was a blur.

Pushing felt very difficult this time.  My legs were heavier than they had ever been from the epidural, so I couldn't even hold on to them.  I struggled with feeling like I was going to pass out or fall off the bed.  I was really uncomfortable, but I pushed and pushed and pushed.

I really only pushed a few times, but it felt like a long time!  The doctor explained that she hated to do an Episiotomy unless absolutely necessary, and this time it was.  He almost came out at the first push, but his head was just too big.  After a few pushes, the baby went into distress, and the doctor told me that I HAD to push him out with one more push, or else she would have to use the vacuum.  I had that done with Dylan and tore very bad, so I was motivated to push him out on my own!

I pushed with all my might, and our sweet baby entered the world!

Our baby let out a cry, and with it, I began to cry.  Somebody, although I'm not sure if it was Grant or the doctor or the nurse, said, "It's a BOY!!!  I tried to sit up to catch a glimpse of him.  The doctor commented on just how short his cord was, then told Grant that she preferred to cut the cord so he didn't slip and accidentally cut me.  We all laughed about that.

All I wanted for this delivery was for Grant to be able to cut the cord and for me to hold my baby right after birth.  That has never happened for us!  I was bummed that Grant wasn't able to cut the cord, but still hopeful that I could hold my baby.

I remember the doctor commenting again about how short his cord was, and staring down, looking very concerned.  Now I know why.

I reached out to grab my baby when the doctor handed him over to our nurse.  The blanket was already on my chest, all ready for me to hold him for the first time.  Disappointment and worry kicked in as the nurse spun on her heel and handed him to another nurse. 

After that, the room went completely silent.  No baby cries, no talking, just absolute silence.

I remember asking if he was okay, and receiving no immediate answer.  The doctor wouldn't even meet my eyes, which was very strange.  I believe our nurse told us that he got fluid in his lungs during his birth, and that he just needed a little help breathing. She kept squeezing my hand and patting my arm.

Minutes went by, and more doctors entered the room.  I repeatedly asked if everything was okay, because our son was completely silent, and nobody answered.  I just remember a group of doctors and nurses surrounding his bassinet and speaking very quietly.

By that point, I knew something was wrong. 

My doctor finished up, said congratulations, flashed us a quick smile, and left the room.  Still no baby cries. 

Eventually, he began crying again, and we breathed a huge sigh of relief.  Doctors and nurses began to leave the room.  The remaining nurse brought him over and handed him to me, as if nothing had happened, then left the room, so we could bond with our new son.

After so many agonizing minutes, we were thrilled to have him in our arms.

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Tuesday, October 1, 2013

Awareness

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Six weeks ago,  Liam came into our world, and we were hit with something we never saw coming.

"We think he has Down Syndrome."

Those six words made my heart plummet.

Six weeks ago, I felt like I was living a nightmare.  Six weeks later, my view has drastically changed.

I haven't been on this journey for long, but I have learned one important lesson:  Down Syndrome is nothing to fear! 



October is Down Syndrome Awareness Month.

Last year it was just a cause to donate to, but this year it means so much more!

I can honestly tell you that most of what I thought I knew about Down Syndrome was WRONG.  Here are a few things I have learned:

*80% of babies born with Down Syndrome are born to a mother UNDER the age of 35.

*Surprises like the one we received are more common than I ever thought.  Most of the families I have spoken to had a surprise Down Syndrome diagnosis AFTER birth.

*Although people with Down Syndrome have similar physical characteristics,  they look more like their family members than each other.  Liam looks EXACTLY like Dylan did as an infant.

*Physical/Intellectual/Speech delays will not be known until the child grows.  People with Down Syndrome have strengths and weaknesses just like "typical" people. Some people with Down Syndrome may never have a delay.  Others may have delays in all categories. 

*Early Intervention is one of the most important things for people with Down Syndrome.

*It is now more common for people with Down Syndrome to live on their own and even get married.

*The lifespan for people with Down Syndrome has increased dramatically.  In 1983 the average life span was 25.  Today it is 60!




I had so many worries, concerns, and fears when Liam was born.

Liam surprised us all!

So far, with the exception of a few physical characteristics, he is exactly like a "typical" baby.  He is hitting all the milestones when he should.  His health is excellent. His thyroid is normal, his heart is healthy, his hearing is perfect, and his eyesight is normal.  He is very strong and has excellent muscle tone.  He has been lifting his head up since he was 2 days old.  He has even rolled over from back to belly several times, which puts him ahead of a "typical" baby with that milestone. He reached those milestones as early as his siblings reached them. He will be able to receive therapy, as needed, through Early Intervention. 

The only problem he had was with feeding.  He was incredibly sleepy the first few weeks, and had a lazy suck. This caused him to lose nearly 2 pounds. With the help of a lactation consultant, a supplemental feeding device, and a daily bottle of formula, he managed to put back on 1 pound.  At 6 weeks old, he weighs less than the average baby weighs at birth. He is still tiny and gaining weight very slowly, but he's finally eating like a pro!

I can't predict what the future holds for Liam, but I do know this: 

He is an absolute joy.

He is just as miraculous and amazing as Dylan, Lexie, and Lily.

He makes us smile every day.

I can't help but kiss him approximately 5 million times a day.

He is the sweetest, most cuddly newborn I have ever met.

He has the most beautiful eyes, the softest baby faux-hawk, and perfect lips.

He is one of the best things that has ever happened to us.

He is exactly who he is supposed to be.

He is simply amazing and beautiful.

He is perfect.