Four years ago, I found myself in a dark hospital room, lonely and grief-stricken. As my youngest son was whisked away for even more testing and my husband dealt with phone calls, I turned to the internet for help. A simple search for Down syndrome yielded both scary information and a list of Down syndrome blogs to read.
I quickly immersed myself into reading blog post after blog post. Some were inspiring and brought me much needed relief, so I felt compelled to reach out to those bloggers and thank them for showing me light in a time of darkness, and ask them if they had any tips or information on where I should turn. Imagine my disappointment when I was met with crickets.
Upon returning home with our baby who might have Down syndrome, I continued to research, and read these popular blog posts. I reached out yet again, and never received a reply from any of the bloggers. It was very disheartening! I later found out that it was the norm when it came to these Down syndrome bloggers, which made me think they weren't the best source of information about Down syndrome. How can you possibly relate to somebody who can't find time to support the Down syndrome community, when that is their main focus?
