Wednesday, May 20, 2009

No sweat

Lexie had her sweat test redone today, to check for CF. Once again, she didn't sweat. The lab tech basically told us that this test most likely won't work for her.

So, we heard from her doctor. She wants us to repeat a stool test so they can compare the levels in this test to the levels in the previous test. If the levels are still the same, we'll talk about testing for CF again.

So...what does this all mean? This means that I have to dig through poop again. This means that we will wait 4+ weeks for the results, worrying about the possibility of CF for even longer. This means that I'm completely fed up with not having answers! On the 24th, Lexie will have had diarrhea every single day, several times a day, for 6 straight months. Instead of starting treatment for malabsorption, we're just going to sit around waiting to see if she needs to be re-checked for CF, and then go from there.

Completely. Fed. Up.


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4 comments:

  1. I would request a genetic test instead of the seat test. They can take a small amount of blood or cheek swab and send it off for screening. Why are they putting you through this over and over. I would call your insurance company and see if it is covered and then request it from your doctor.

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  2. i am sorry you have to redo the poop tests. would she have any other symptoms for cf? i thought that was a poor muscular issue as well or am i wrong?

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  3. I'm so sorry to hear about this. Do you feel comfortable with your doctor, or should you consider seeking a second opinion? Hang in there!

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  4. You are kidding. I am so sorry to hear this. Crazy that it has to take this long. As a parent, I can't imagine how this has upset you. Ick. We continue to think of you and her.

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