Monday, May 11, 2009

Diagnosis....

After almost 6 months of constant diarrhea, we finally have a diagnosis for Lexie: Malabsorption. Basically, certain nutrients aren't being absorbed by her body, which is causing the diarrhea, the anemia, and most likely other nutritional deficiencies.

I am relieved that we finally know what's wrong, but also terrified for another reason. One of the nutrients that isn't being absorbed is Potassium. The malabsorption/potassium link concerned Lexie's doctor enough to order a sweat test, which is to test for Cystic Fibrosis. I know she is just ruling it out to be safe, but the thought that they have to rule it out, scares me. I am trying to remain positive, because Lexie has no other CF symptoms, but there's always a "what if?" running through my head.

On top of that, Dylan has to go to his pediatric dermatologist next Monday. He will most likely need to have a very suspicious-looking mole removed and biopsied.

It is a mother's greatest fear that their child will get sick. Instead of just one child to worry about, I have two. All I can do is take this one step at a time.

I am praying that CF will be ruled out, and that we can move ahead with a treatment plan for Lexie's problem. It will most likely involve speaking to a dietician about a special diet for her, and a daily pancreatic enzyme supplement. Malabsorption is a manageable condition, and I'm glad we caught it early. (Please bear with me if I messed up any facts-I'm still trying to absorb all this information!) I am also praying that Dylan's mole is just a cosmetic problem, and nothing more.

I can't wait until this is all over.


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9 comments:

  1. I am glad you are getting some answers. I will pray that it is not CF and that Dylans mole is just cosmetic. Much love to you.

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  2. Oh my, I pray for your family as well. Like you said, you are sure it is not anything serious, but as a mother, well, we worry.
    And for Dylan, the same thing~ that it is benign and nothing to be concerned over. Thanks for the update.

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  3. I am praying! And I am also thankful that you finally have a diagnosis for Lexie! This is step one and soon, she'll be feeling fine again. I pray that it isn't CF and that Dylan's mole is nothing to be concerned with. Jason has had moles removed as a child and Zack has some that are popping up now so I understand the worries... I worry about both of them and their moles all the time. You're such a great mom to be on top of this and running these tests and figuring out what's up instead of just playing the wait and see game. Please keep us updated!

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  4. Hi Stef....Well thats just poopy! (no pun intended) :) Hope lil Lexie gets better! Tell the kiddos I said HI!!
    I guess Grant too :) And im sure Dylans moles are nothing to worry over!!

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  5. At least you know now. It is so hard to have uncertainty surrounding your kiddo's health. I will pray it is nothing more serious for either one of them.

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  6. I will be thinking of you all! Your children are lucky to have such a persistent and caring mother.

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  7. Oh my.

    I hope everything is sorted out soon and you have only positive reports! The waiting is so hard :( I'll say a prayer for you and your sweet babies!

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  8. Praying for you and your sweet babies.
    Love,
    Becky

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  9. Glad you were able to FINALLY get a diagnosis. I will keep her in my prayers.

    Yay for a pedicure!

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